Endometriosis Awareness Week – My Story

I talked a little a while ago about my endometriosis, looking back after a year from my informal diagnosis, but for those who don’t know a lot about my personal story, here is a recap!

When I started getting pains, I thought that they were normal. I had seen my mom and my sister in similar situations to me, so thought nothing of it.

Monthly pains were turning into a vicious cycle: wake up, realised I was heavily bleeding, cramps would begin, mad dash for some pain relief and a hot water bottle, if I was lucky, I could get into bed and sleep it off, but 9 times out of 10 it ended up with my head over the toilet being sick due to the debilitating pain, shouting, screaming and punching my stomach out of desperation, hoping that it would help with the pain, with my mom scrunching my hair trying to calm me down until I passed out from exhaustion.

Countless trips to the doctors saw me on the combined contraceptive pill to help me with pain management, strong pain killers and eventually the mini pill, to stop my periods altogether. The mini pill was great for just over a year, and it really worked for curbing my pain, however one day I woke up and felt like I was back to square one, I ended up in hospital because the bleeding was that heavy and the pains were the most intense I had felt in years.

Fast forward a month or so and I saw an endometriosis surgeon and specialist who asked me a lot of questions and informed me that I needed surgery.

6 incredibly frustrating months and 3 a&e visits later, I was finally due to have my surgery to remove my endometriosis and fit me with the Mirena coil. Unfortunately my surgery got cancelled on the day, but I was booked in for a few days later.

The day of the surgery is all a bit of a blur! I had the most amazing team of NHS staff looking after and operating on me and I am so grateful of their time, patience and hard work.

I was discharged later that evening and was on bed rest for around a week and took a few more weeks to feel like I had fully recovered.

I had my stitches removed and a post-op appointment that informed me of the extent of my endometriosis, finally a formal diagnosis of stage 2 endometriosis. During the surgery they removed endometriosis from both of my ovaries, uterus and small intestines and showed me all the cool (and kinda gross) photos from the surgery haha!

I am now six months post-op. It honestly feels like a life time ago! Up until December I was symptom free, but at the end of December I began getting my symptoms again, thankfully a lot more dull and less intense than the first time around, so hopefully I can wait another couple of years before needing surgery again!

Everyone has different experiences with endometriosis, there is no one fits all rule with it and this is just my personal story!

If you want to donate to Endometriosis UK, you can do so by following my JustGiving link:

https://www.justgiving.com/fundraising/maddie-parsons 

M x 

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journalingmaddie

22 & online journaling day to day life

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